Advocacy

Advocacy

Advocacy

As patients and caregivers ourselves, we know each brain cancer experience is unique. Patient and caregiver voice is central to our effort to raise awareness and advocate for the gaps in care.

Current Advocacy Work

Representing Patient Voices \ 2023

Brain Cancer Canada provided an account of the patient and caregiver experience to The Formulary Management Expert Committee (FMEC), of the Canadian Agency for Drugs, Technology, and Health (CADTH), now Canada Drug Agency (CDA), during a reimbursement review for the concurrent use of Lomustine and Bevacizumab, two front-line chemotherapies. 

Collaborative Advocacy for Access to Treatment \ 2024

Brain Cancer Canada led a 5-agency collaborative advocacy campaign addressed to the Canadian Association of Provincial Cancer Agencies (CAPCA) advocating for the expansion of access to drugs and therapies for patients with Glioblastoma.

A National Call for Brain Cancer Research \ 2024

Tammy Farand, a brain cancer advocate from St. Albert, Alberta, with support from Member of Parliament M. Cooper, launches a national brain cancer research petition.

Representing Patient Voices \ 2023

Brain Cancer Canada provided an account of the patient and caregiver experience to The Formulary Management Expert Committee (FMEC), of the Canadian Agency for Drugs, Technology, and Health (CADTH), now Canada Drug Agency (CDA), during a reimbursement review for the concurrent use of Lomustine and Bevacizumab, two front-line chemotherapies. 

A National Call for Brain Cancer Research \ 2024

Tammy Farand, a brain cancer advocate from St. Albert, Alberta, with support from Member of Parliament M. Cooper, launches a national brain cancer research petition.

Collaborative Advocacy for Access to Treatment \ 2024

Brain Cancer Canada led a 5-agency collaborative advocacy campaign addressed to the Canadian Association of Provincial Cancer Agencies (CAPCA) advocating for the expansion of access to drugs and therapies for patients with Glioblastoma.

Studies & Surveys

Patient and caregiver voice is essential as processes impacting the brain cancer experience are improved and new treatments are launched. You can help inform and shape the direction that things take. 

Petitions

Raising awareness of brain cancer itself and the challenges encountered throughout a brain cancer experience for the patient, caregiver, and clinician remains a priority for Brain Cancer Canada. Please consider signing the current active petition(s) so that we can bring the issues in front of policy makers.

Ways To Advocate

Are there particular inequities or changes you would like to see in the brain cancer experience? You can be part of the community that helps to advocate for positive change.

Sign Up for Updates

Brain Cancer Canada will share announcements with you including: funding opportunities, calls for input and participation, news, and special events. Brain Cancer Canada does not sell your personal information, nor share your contact information with third parties. 

Sign Up for Updates

Brain Cancer Canada will share announcements with you including: funding opportunities, calls for input and participation, news, and special events. Brain Cancer Canada does not sell your personal information, nor share your contact information with third parties. 

Sign Up for Updates

Brain Cancer Canada will share announcements with you including: funding opportunities, calls for input and participation, news, and special events. Brain Cancer Canada does not sell your personal information, nor share your contact information with third parties.